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Author, Historian, Storyteller

Archives for January 2017

You Are Not Alone

Depression, Live and Learn, PTSDLeave a comment

Because of my mental illnesses, I have been subject to a plethora of misconceptions. My depression tells me that I am a burden and not worthy of the attention and love of those around me. My panic disorder tells me that I am in extreme peril and my PTSD tells me that I will never be safe again. Those last two like to work in tandem. As paralyzing and inconvenient as those things are, they aren’t as damaging as the misconception that I held for years – that I was all alone. That nobody understood how I was feeling, that nobody could relate or truly empathize, that there was no community where I could belong. I was too broken to reveal my true self to anyone.

Broken

I have since come to discover that I am not alone. That belief is a load of shit. I actually belong to a rather extensive community, but few know it exists. Because of the stigma of mental illness and the shame associated with being a victim, people don’t talk their mental illness or abuse. Those that do are often labeled as outliers, over-sharers, attention seekers at best and are shamed and ridiculed at worst. It is not a “polite” topic of conversation. However, I feel that it is an absolutely essential topic of conversation.

By staying silent I felt alienated and that made all of my symptoms worse. Then one day I summoned up the courage and I wrote a blog post about my depression. In this post, I poured out my unique experience and the feelings that only I was feeling while out there all alone in my abyss. You can imagine my surprise when I got comments, both public and private, from people agreeing with me and saying that they feel exactly the same way. That they go through the exact same cycles and emotions. That I had put into words something they had been trying to say for years.

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What? How could these people understand my inner most feelings when society had been telling me for years that I was an aberration? Simple. Society was wrong. I was not/am not an aberration. The things that I was going through, the thoughts that I was thinking were common place. In fact, I would hazard to guess that they run rampant throughout our society. This revelation that I was not alone and that people understood me, did more good than several months of therapy. It was like a burden had been lifted. I didn’t have to carry the weight of my illness by myself anymore.

For me this discovery was years ago. I bring it up now because I have been receiving messages from people who share their stories with me – either in part or in full – and a recurring theme that is coming through is that my blog helped them feel like they were not alone. I’m so glad that they got that message and I hope it sinks in. But for those who haven’t received that message, it occurred to me that it bore stating publicly. Because as I discovered years ago, with all of my other dark thoughts, the feeling of being all alone is not unique. You are not alone.

Not Alone

PTSD and Trump

Depression, Life, Politics, PTSDView all 2 comments

I have made no secret of the fact that I, like many in our country, think that Trump is an abomination and ruinous to the progress that we have been able to eke out toward a goal of equal rights for all in this country. His election literally makes me ill. Since his election, many of the PTSD symptoms that I had worked for over a year to overcome, have come flooding back. The panic attacks are back. The bad dreams are back. The abject feeling of helplessness is back. I am not alone in this. I personally know several people experiencing this same phenomenon, and I would wager that therapists across this country have noted an uptick in patients with a resurgence of PTSD symptoms.

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Trump is a self-confessed sexual predator. His election to the highest office in this country sent a crystal clear message to survivors of sexual assault and abuse that that behavior is totally acceptable. As two of the predominant symptoms of survivors of sexual abuse are shame and a belief that the abuse was their fault, I have a feeling that November 8th undid years of therapy for many people. The inauguration on the 20th probably undid more years. As my abuser was a woman, this was not the cause of my relapse. For me, it was the bullying and the gas-lighting.

I honestly didn’t even realize that I had relapsed as badly as I had, until my therapist pointed out that my despair after the election went far beyond the election itself. I had moments where I was paralyzed by panic, followed by rage, then denial, then I would just give up. Meanwhile, I had a never-ending loop playing in my head of every time I was ever bullied in my entire childhood. There was a lot more there then I remembered. It’s amazing what the brain can repress in order to protect itself. But it was all back, playing in Technicolor 24/7. The mistreatment. The lying about it afterwards. The carte blanche acceptance of the aggressor’s story.

Gas Lighting

What shocked me though, is that the bullies weren’t the stars of this film. Instead, the focus was on those who should have protected me. Those who should have stood up for me. Those who should have listened to me. Except for very rare occasions, ever single memory involved these “protectors” doing one of three things:

  1. Ignoring the maltreatment entirely.
  2. Participating in the maltreatment.
  3. Leading the maltreatment.

The first one I can understand to some extent. A very small extent. The second two caused the psychological damage. The fact that nobody had my back. That nobody felt the need to stop or even acknowledge the maltreatment. The subsequent belief, that I didn’t deserve anything better. That I wasn’t worthy of better. I can tell you right now that I spent many of my adult years letting people treat me like crap and letting them take advantage of me, because I thought I deserved it. And it took many hours of therapy to break those beliefs and patterns. Clearly, it’s work I’m still doing.

So to say that my distress comes from Trump himself is a gross misrepresentation that gives that man way more credit than he deserves. My distress comes from the feeling of betrayal, and the feeling of helplessness that I have been transported back to my childhood, by all of those who voted him into office. We, as an enlightened people, are supposed to look out for our fellow man. Common decency dictates that those who are stronger, more able, look out for those who are weaker. On November 8th, millions of people in this country voted for a man who revels in abusing those he deems weaker. And with those votes, those millions of people said in one unified voice to every survivor of abuse, “You deserved it.”

By voting for him, you condoned his actions, his words and his beliefs, telling everyone in the world that those actions/words/beliefs are perfectly acceptable and further more will help you succeed. I am disheartened by Trump’s policies and horrified at the actions that he is already taking in office. But I am crippled with grief by how many people in this country consider my abuse acceptable behavior. To others who are feeling this too, please know that you are not alone. Now is the time for us to stand together, and have each other’s backs.

Marchers

 

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OCD – Not Necessarily a Bad Thing

Life, Live and Learn, OCDLeave a comment

Last December my company had its annual holiday dinner, and since the restaurant was near my house a couple of co-workers came over to get ready. For whatever reason, I don’t remember what, I mentioned that I have OCD. Unlike the other mental illnesses that I have, no one ever seems to believe me on this one. I don’t think people think I’m lying or anything, but “I’m OCD” gets bandied about as a joke so commonly by people who aren’t, that it’s hard to imagine that someone actually has it. So when I actually show symptoms people are surprised, as is what happened with my coworker.

That night at dinner we were seated next to each other and she happened to look over and see my plate right as I was finishing organizing my food so that there was a piece of chicken paired up with a proportionately sized piece of potato all neatly lined up. I was so engrossed in this task I didn’t even realize she was looking at me until she said, “Wow, you really do have OCD.” It cracked me up. Hadn’t I just told her that I did? Then came the inevitable question, “So do you have to wash your hands three times, or check the stove multiple times, or anything like that?”

ocd

No, that’s not how my OCD manifests. Okay, that’s a little bit of a lie. I always grab three paper towels to dry my hands in public restrooms. Doesn’t matter if two is enough, I inevitably grab that third one. I can’t stop myself. But other than that my thing isn’t counting; it’s organizing. If it can be alphabetized, it is. If it can be color-coded, it is. If it can be sorted by size or shape, it is. If it can be alphabetized, color-coded and sorted by size or shape I am one happy camper!

As a child, this was how I coped with having no control on the rest of my surroundings. My bedroom was the epitome of the saying, “A place for everything, and everything in its place.” If my sister walked in and moved something even half an inch, I knew it and I had to fix it. One time when I was at camp my mom and her friend thought they would be nice and cleaned up my trolls for me – I had over 200. The problem was that they were organized into a troll village that took up over half of my room. I hadn’t left them out, I had left them in their respective homes. So when I got home and saw that all of this had been “cleaned-up,” I lost my shit – like yelling, crying, furiously working to get it all back in place lost my shit. I wouldn’t eat or sleep until I got it back to normal.

This was the worst that I ever got, which is admittedly pretty bad. But as I got older and got my compulsions under control I started to swing in the opposite direction out of fear that I would get compulsive again. Even if it bothered me, I wouldn’t allow myself to organize everything. My desk had to be cluttered. Or my nightstand. Something had to be out of order to prove to myself that I was better. That I didn’t need everything to be perfect. It wasn’t until last year that I finally realized I was doing this. That was also when I realized that OCD aside, I am more content as a person when things are neat and organized. So I organized my desk, and amazingly the world didn’t end, nor did I fall back into harmful compulsive behaviors. Whoo! Instead, I realized that I can use my OCD to my benefit. I’m going to England for vacation and food might become an issue at times because I have so many food allergies. So much to my little OCD heart’s delight, I made a baggie of snacks for each day that I will be gone, taking into account the activities of the day, my sweet tooth, and penchant for low-blood sugar.

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Nailed it!

A Confession Without Shame

Depression, Life, Live and LearnView all 4 comments

I have a confession to make. I’m not really a Star Wars fan. I know this sounds like no big deal, but when all of your friends are huge fandom geeks, them are fighin’ words. My saving grace is that I don’t dislike the movies, I just don’t seek them out. I bring this up because for the past week my Facebook feed has been filled with tributes and remembrances of Carrie Fisher. In scanning through these, I learned something new about her. She not only suffered from mental illness, but she openly spoke about it and fought to diminish the stigma associated with mental illness. This made me take a second look at this woman, and I gained a whole new respect for her.

For three-quarters of my life I have suffered from multiple forms of mental illness – depression, OCD, panic disorder and PTSD – and for a large part of my struggle my biggest fight was against the stigma. I didn’t want to be mentally ill, because that made me weird/different/crazy/unbalanced etc. So instead of seeking out the help I needed, I specifically denied myself that help because I was “stronger” than my mental illness. Even after I sought out therapy, I refused to take medication because, again, I was “stronger” than my disease. Looking back at that mindset now, I have to laugh if only to keep myself from crying. How much of my life was frittered away fighting a fight that didn’t need to exist?

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I was in my thirties before I finally accepted my mental illnesses and began to actively treat them for what they were, illnesses. Not a defect in my character, but an illness. What finally helped me turn that corner, was talking to a friend who had just been diagnosed with diabetes. This friend had tried to control her diabetes through diet, exercise, and every other bit of advice she could find. But at the end of the day, it wasn’t working and she had a choice to make. She could either be sick every day of her life, or she could go on insulin and only be sick every once in a while. Of course, she went on insulin. It was a no-brainer. Let me repeat that, the choice of being sick every day or going on medication was a no-brainer.

The lightbulb turned on. I had tried every conceivable treatment I could find for my depression – exercise, therapy, supplements, dogs, somato-emotional-release, more therapy, sun lamps, acupuncture, nature, etc – and after decades of trying things, I was still sick every day and quite frankly getting worse. Life was a constant fight. Getting up in the morning was a battle. Focusing on tasks was a battle. Motivating myself to leave the house was a battle. I fought every day all day and I was exhausted. Yet, I refused to medicate myself for my illness because that would mean admitting that something was wrong with me, and what would people say? What the actual fuck?

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I decided then and there that I no longer gave a crap what other people thought. I also decided that nothing was wrong/weird/different/crazy about me, I simply had a disease that could be treated. So I treated it. Now I’m not saying that medication is right for everyone, I only medicate my depression. I use alternate treatments for everything else because it can be a bitch figuring out what medications and what dosages work. Especially when I discovered that medication for the panic disorder made my depression worse, even while on medication for the depression. When this trial and error doesn’t go well, it’s not pretty and I wouldn’t wish that process on my worst enemy. Finding medications for everything wasn’t worth it. However, I learned that if I medicate my depression I can deal with everything else going on. But when the depression isn’t in check, everything else runs rampant.

So I medicate the depression, and most days I can function with only slight battles. Yes, some days the panic disorder wins the battle. Some days the OCD wins the battle. Some days they all gang up on me at once and I spend the day curled up with my dogs. But most days I am a fully-functioning, active member of society and many people are surprised when I tell them of my diagnoses. They’re even more surprised that I talk about it openly and have no qualms answering questions. Because all of my therapies aside, openly speaking about my mental illness has been a better balm than anything else. There is no shame in mental illness, and the more we talk about it the more we kill that stigma. So I’m here to talk.

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