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Archives for August 2014

Top Ten Ways You Know You Have IBS

1. The thought of eating ethnic food you’ve never tried before makes you break out in a cold sweat. Actually the thought of eating anything new makes you break out in a cold sweat.

2. You’ve lost track of how many times you’ve had to employ the courtesy flush more than once in a sitting. See #1

3. You will eat the same thing every day for a month with no complaints, because your IBS isn’t acting up and you don’t dare rock the boat. See #2

4. Going from trim to muffin-top back to trim over the course of an afternoon isn’t disconcerting, it’s just a day of the week that ends in Y.

5. You’ve come to accept that a bad IBS day during allergy season means that you’re staying within 10 yards of a restroom. At. All. Times.

IBS6. Conversations about poop don’t strike you as odd. In fact you find it a little bit odd when you realize that some of your friends don’t talk about poop at all, and you have a special bonding moment when your new-mother friends realize that they have someone to talk about poop with.

7. You are familiar with every homeopathic and OTC “tummy fix” and are secretly, or sometimes openly, annoyed when someone offers you one that isn’t your preferred brand.

8. You know that if you ever get appendicitis you’ll probably die because you won’t realize that that pain isn’t your normal pain/cramps/malaise until too late.

9. You play the “Is it worth it?” game with at least one dish at every buffet, BBQ and party you go to. Sometimes it’s totally worth it, other times you rue the day you were born.

10. You’ve perfected the art of farting in public . . . because it happens . . . a lot.

fart fish

The Task of Choosing Ten

I was tagged on Facebook to list ten books that really made an impact on my life. Not because of grandeur or quality of writing, just books, or literature in general, that has managed to stay with me. In the instructions, you are admonished not to spend a lot of time thinking about it, just put down the ones that immediately come to mind. So I started to make my list, and I found myself thinking really hard about it. Not because I wanted to make it just right, or I wanted people to be impressed by my selections. I was struggling because I’ve never been a big reader, and I was having difficulties coming up with ten titles. In the end I wound up with five plays and five books, and of the ten only three of them were read in my youth, and one of those three was read at the age of 17.

1. The Borning Room by Paul Fleischman
2. Our Country’s Good by Timberlake Wertenbaker
3. The Giver by Lois Lowry
4. A Room of One’s Own by Virginia Woolf
5. The Scarlet Letter by Nathaniel Hawthorne
6. When Nietzsche Wept by Irvin Yalom
7. King Lear by Shakespeare
8. Henry V by Shakespeare
9. Stop Kiss by Diana Son
10. Arcadia by Tom Stoppard

You see, my sister and I were born 11 months apart. Crazy, I know. My parents always claimed that it was on purpose. Personally, I think that there isn’t much to do in a small mountain town … At any rate, we are very close in age and living in the aforementioned small mountain town we wound up sharing everything. Everything. We had the same teachers, were in all the same clubs and to a certain extent we even shared the same friends. Since we were so close in age, and the opportunities were few and far between, in many instances we had no choice in the matter. However, when my dad jokes that he raised a right brain and a left brain in two separate children, he’s not far off. My sister and I have little in common, heck we don’t even look alike.

Therefore, whenever it was possible we would do things separately and there became this unwritten code that both of us acknowledged. Some things were hers, some things were mine, and we never strayed into the other person’s “things.” Oddly, we never fought about who got what “thing” either, it just naturally happened. We had plenty of other things to fight about though. There was a time during our early teens that I affectionately refer to as WWIII.

Rivalry

My sister’s biggest “thing” was reading. She was, and still is, a voracious reader. Now that’s not to say that I didn’t read at all, obviously for school and summer book clubs I had to. So I would read the minimum amount required and no more, and I would make damn sure that I never read the books that Jen did. Those were hers and that was sacred territory. Likewise, she stayed away from the books that I read, keeping that world completely separate. My biggest “thing” was theater and performing and she was more than willing to stay far, far away. We had our things and it kept us sane-ish. The funny thing is that by the time we were both in high school, and the treatise had been signed to end WWIII, we realized that maybe this whole sharing thing wasn’t such a bad gig. We embraced our mutual group of friends and stopped trying to avoid each other in clubs and groups.

But the real olive branch came, when one day Jen came into my room and handed me a book. It was one of “hers.” From a series she adored, by an author she had gone to meet to get an autograph. Normally, I would not have touched that book with a ten foot pole. It was off limits, go directly to jail do not collect $200, end of story. And here she was, handing it to me and encouraging me to read it because she thought that I would really like the story. Mind blown. That is how I came to read the Redwall series, and the beginning of my sister’s and my odd reading relationship.

Now we will often read the same books and talk about them. Generally books of her choosing because she finds my taste a little too heavy and I’ll read just about anything. What cracks me up though, is that every now and then she’ll call me to ask if I told her that she wouldn’t like a specific book, or if she’s avoided it her entire life because it was one of “mine.” Funny how something that seemed so important twenty years ago, doesn’t matter at all now. It still feels a little against the grain every time that I pick up a book, but I’m getting over it. Maybe next time it won’t take me so long to come up with ten titles.

Jen and Me

Knowledge is Power, but Ignorance is Bliss

My mother was diagnosed with Multiple Sclerosis (MS) when I was two. Eighteen HORRIBLE years later she died a few weeks before my 21st birthday. The progression of her disease was swift and unrelenting. She started out with the worst possible kind (which is rare), and therefore she never had remissions. There were times that the rate of increasing damage slowed, but it never went away completely. It certainly never reversed! I learned several things with great clarity watching my mother die.

  1. It is the quality of one’s years that matters most, not the quantity of those years.
  2. Ignoring something bad does not make it go away. It actually makes the situation worse.
  3. My worst nightmare is being diagnosed with MS.

I was always told that MS was not a genetic disease and therefore my odds of getting it were the same as everybody else’s. However, I have since come to learn that many doctors/scholars disagree with this belief and there is plenty of evidence that MS does indeed run in families. So my odds of having MS are a little bit higher. Then last year someone else in my family was diagnosed. That’s the beginning of a run. That’s one more blow to my odds. That means that if this were a bet in Vegas, the smart money is on me being diagnosed with MS in the next few years.

Bookie

Needless to say, this has preoccupied a large part of my thinking for some time now. Then recently, my aunt asked me if I had been tested – you know like the breast cancer test that they have that shows if you have the genetic marker showing a predisposition to the disease. I of course told her that I hadn’t, because a test doesn’t exist. But this got me to thinking, maybe I was wrong. So I contacted an MS Center and asked them if there was a test. I was right, the answer is no. However, because of my family history they said that I could/should be screened by a neurologist who specializes in MS.

Silence

They could even help me find one in my area if I didn’t want to drive down to the center.

You could hear a pin drop.

 

Now I don’t know what all is involved in this screening and whether there would be definitive answers. I always thought that the only way that doctors could tell if you had the disease was after it was already full blown and wreaking havoc in your system. I had assumed that the only option open to me was to sit it out and let time tell. Apparently I was wrong. But now I’m left with the quandary of whether or not I get screened. The way I see it, there are only a few probable outcomes.

  1. I don’t have MS and will never develop MS.
  2. I don’t have MS right now, but it might develop later.
  3. Results are inconclusive, only time will tell.
  4. I likely have MS, but no damage is evident yet.
  5. I have MS – worst nightmare realized.

So the question becomes will screening make me worry less or worry more? I’m not a doctor, so I realize that there are probably a lot of other possible outcomes, but since I can only work with what I know I’m going to work with these. If I get screened there is only a 1 in 5 chance that the screening will remove my worry and fear. However, there is a 3 in 5 chance that the screening will not only do nothing to allay my fears, but it might make them worse. These odds aren’t really in my favor. I know that knowledge is power and it is always better in the long run to know what you’re dealing with so you can react intelligently. But ignorance is also bliss. If I’m not going to start having symptoms for three years, will the quality of those years be better with me not knowing, or will they be better with the knowledge that there is a rain cloud on the horizon just waiting to sweep over my life?

head vs heart

My head knows that the prudent choice is to get screened and face whatever it is that needs to be faced head on. My heart isn’t sure that it can survive one more wrenching ache and prefers to stay ignorantly hiding from it all. I don’t know. Do I listen to my head or to my heart?

What would you do?

Suicide is Not Selfish

With Monday’s announcement of the death of Robin Williams I’m sure that like me, you have been inundated with shocked reactions, tributes and more articles than you could possibly read about depression and suicide. Well, as loath as I usually am to jump on any social media trending bandwagon, this one I’m getting on board, because this is a topic that has been on my mind as of late. About a month ago I finished reading a book where the main character kills herself and I wrote a blog about the emotions that journey churned up inside of me. You can read that post here. A couple of weeks later one of my followers on Twitter asked how I would describe suicide in one word. She told me that it was for a survey. I told her short-sighted.

In my opinion, the biggest symptom of depression is short-sightedness. When you are depressed, truly, clinically depressed not just bummed out over something, you become short-sighted. You can’t see beyond the pain. You can’t see beyond the haze, the loneliness, the dejection and the failure. The burden that your heaviness places on all those that you encounter. It’s as if there is an all-encompassing fog. You can be surrounded by people, hear them, feel their presence, see them swirling the fog around you, but be completely unable to reach them. Unable to absorb their words, unable to feel their comfort, unable to process their presence. You are absolutely alone. No one can understand what you’re feeling, no one has ever felt like this before, and no one cares. So you sleep. You sleep more than anyone needs to sleep, because in sleep you escape. The pain eases and the fog lifts. You are free to just be.

freeee

 

The second you open your eyes, however, it all rushes back in with a whoosh and the weight of it takes your breath away. Do you get up and fight through one more day, or do you sleep some more? Eventually the lure of sleep becomes stronger and the need to fight wanes. The struggle seems insurmountable. There’s a looming giant blocking your path that takes a step closer every time you reawaken until you are finally forced with the decision; do you stand alone on the field of battle with no weapons and your reserves of energy spent to fight the goliath, or do you peacefully slip into sleep forever? In that moment, that pivotal all-encompassing moment the decision is easy. Your short-sighted depression has already told you that you won’t win against the giant. So why delay the inevitable? Why cause yourself more pain?

I have definitely seen people react to a suicide by calling the person selfish. I disagree. Suicide is not selfish. Suicide is the only logical answer in a disconnected world where sophistry rules. In a mind where all thoughts, interactions and beliefs belittle, shame and discourage the self. For those people, in the grips of that disease, suicide is the only logical answer. It not only ends the mind-numbing pain, it removes the burden placed on all those around you. Your family, friends, and co-workers will no longer have to deal with you. To a depressed mind, suicide is the cessation of a great burden and the removal of pain for everyone involved. The theme song of “M.A.S.H.” – “Suicide is Painless was clearly written by someone who knows the grips of true depression.

MASH

Of course, to a healthy mind, this makes absolutely no sense whatsoever. And everybody has felt depressed from time to time, so they assume that they can relate. However, I think the best comparison I have ever heard is that somebody who has only been momentarily depressed (in my opinion any episode that lasts less than a year is a moment) telling someone who is clinically depressed that they know what they’re going through is like somebody telling an amputee that they can relate because they once had to get stitches. It’s just not the same. Clinical depression is a disease that affects everything you do, every day of your life.

I have been clinically depressed for 21 years. This way of life is all I know. So when I heard that Robin Williams had committed suicide, unlike all of the people around me, I was not shocked. I was saddened, but I was not shocked. In my mind it made perfect sense that this man, with a history of depression and addiction who made a living making people laugh uproariously for years, would commit suicide. You heard me right. I lumped his comedy in with his darkness. There is a reason that the majority of painted clown faces are crying. I would hazard to guess that most comedians are, or have been at some point in their lives, severely depressed. David Wong an editor at Cracked.com wrote this article about that very topic, and he hit the nail on the head. Even going as far back as the class clown in school, there is usually something lurking beneath the comedy.

The Sad Clown by jlmorris

The Sad Clown by jlmorris

I was not the class clown growing up. I didn’t discover the magic of laughter until later in life. Now I use it all the time. I love to make my friends laugh and I revel in that moment of power that that laughter brings me. I made them laugh. I must be worthwhile after all. But if you really look closely, you’ll notice that my particular brand of humor is self-deprecating. I tell funny stories of me doing embarrassing things. I make funny faces and noises. Sometimes I do so unintentionally and when a friend says, “say that again, “obviously making fun of me, instead of blushing at my out of place remark or reaction and fumbling forward, I repeat whatever I did or said with pride, usually exaggerated a little bit for better effect. I do so because I know that I’ll get the laugh, and there are times that that laugh is the only thing that connects me to the people around me. That laugh is the only thing that I have that says that I belong and that those people want me around. So I make them laugh again and again, and each peal is a gentle pat on the head saying “There, there. Someone wants you.”

Sounds pathetic doesn’t it? Well it feels pathetic too. And I can tell you right now, that reaction does not come from low self-confidence, or low self-esteem. It comes from my depression.

It’s a part of my disease that I recognize and acknowledge. I always have. That’s why when I was an actress and the cast was encouraged to greet the audience after the show I would drag my feet. I would take extra-long to get out of costume and make-up so that by the time I made it to the lobby there were only a few patrons left. I yearned for their praise and applause, but I knew, that like the laughter I could provoke, that praise wouldn’t penetrate to create a connection and so would leave me feeling hollow after time had passed. It would leave me seeking more and more, and it would leave me broken if I didn’t get a steady stream. So I didn’t allow myself to drink from that well. It didn’t matter if people liked my work, as long as I didn’t like myself. Somewhere in my brain or my heart or my very being I understood this. I also understood that as long as I let my depression have free reign in my head, I would never like myself. So I waged war on my depression. I took the battle to the goliath before he had a chance to get too close and overwhelm me. I didn’t go alone either. I armed myself with knowledge, therapists, pharmaceuticals, exercise, sunshine, diet, vitamin supplements, emotional-release therapies, herbal remedies and a good deal of thick-headed stubbornness.

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Did I win the battle? Nope. I’m still depressed and probably will be until the day that I die. The difference is that now I know how to manage my disease, and I understand that that management is going to have to change as my disease shifts and fluxes with my life. Depression is a wily little fucker, and just when you think you have everything figured out it’ll throw you a curve ball. It keeps things interesting.

The one weapon in my arsenal that is new, is talking about my disease with more than just a therapist or a really close friend. A huge weight lifted from my shoulders the moment that I decided to throw caution to the wind, stare all of the stigmas in the face and admit to my condition. There are those in my acquaintance who do not approve of this choice. I don’t care. Having a mental illness does not mean that I am weak, and it does not mean that I have been “strong for too long.” I think we’ve all seen that meme floating around. It means that for whatever reason, physiological or environmental, my body does not produce the correct chemicals in the correct amounts. End. Of. Story. There is nothing shameful in that. Therefore, I am not ashamed to openly admit that I suffer from clinical depression and anxiety, and if that admission makes some people uncomfortable, that’s their problem not mine. I will not hide a huge part of who I am for the comfort of others, and nobody else should have to either. It is in the hiding and denial that the giant is allowed to creep ever closer.

Robin Williams has undoubtedly left a rich legacy behind him. I thank him the most for unwittingly opening up the door for a frank discussion about depression and suicide. Thank you for that. May you stand in the sunshine and finally be at peace.

Aladdin