I think the most frustrating thing for me about living with chronic illness, is not the illness itself, but having to constantly explain why I’m still sick. To have to constantly apologize that circumstances have not changed and that there is nothing that I can do about it. That I am doing everything in my power, and none of it is working. Or it works for a little bit and everything is great, and then it stops working. That no, upping the dose is not the answer. Yes, I tried it. Yes, I’ve tried all of the dozens of suggestions you have, plus dozens more. Right now, this is as good as it gets.
Yes, my thyroid has been tested, it works just fine. It’s my adrenal glands that don’t work. No, I have no idea why my body functions differently than everybody else. Yes, I’m working with a trained medical professional. No, she doesn’t know why my body is functioning abnormally either. Yes, my doctor knows what she’s doing. Yes, I saw multiple doctors before I picked her. Yes, I did my research and picked her carefully to make sure she was exactly the right doctor for me. Yes, she has helped.
How? Okay, let me dive into the history of my treatment with her, how much time to do you have? Should I include supplements/medicines we’ve tried and all of the different testing that’s been done, or are you looking for more of the Reader’s Digest version of the past two years and thousands of dollars of care? Trust me, I am more aware than anybody else that this has been going on for two years.
Yes, I’m on medicine and supplements. Yes, I’m buying the good quality ones and not the knock-offs at the drug store. In fact, I spend more each month on those than I do on food. No, I’m not going out partying in my time off. I’m too exhausted to go out partying. Not to mention, I can’t afford to go out partying because all of my money goes towards the appointments, the tests, the supplements and medicines that work well enough to keep me upright and looking healthy, but don’t actually make me consistently feel healthy. And the oh so wonderful side effect of all it, is that I get to explain this all over again ever month or so, because I don’t look sick, so why am I not better? I have no idea. I am doing the best that I can and I’m sorry that it’s not good enough for you.
Yes, I will keep you updated. I’ll pencil in this exact conversation for next month.